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Now, before you go out to buy mummy that pair of slippers or that fluffy robe for Mother’s Day (12th May 2013 in Australia), take a moment to think of all the peeps out there living in slippers and that fluffy robe practically day in and day out because they literally have no energy to move, eat or speak. This is how bad Chronic Fatigue Syndrome can be.
Chronic Fatigue Syndrome is a debilitating condition and has many symptoms including:
– Persistent fatigue
– Widespread muscle and joint pain
– Sensitivity to light
– Cognitive difficulties
– Serve mental and physical exhaustion
and the list continues…..
A very close family member has recently been diagnosed with CFS, after a mentally/physically draining experience with multiple doctors, they are taking one day at a time- both good days and bad. I also knew that I had a reader, Nat (what a fabulous name), who was a CFS sufferer and recently noticed an awareness day. So what better way to raise awareness than learn straight from Nat about her experience. I’m grateful she was very willing to share her story with all of you on my blog.
All I ask on CFS Awareness Day is for you to share this post with your friends and family to increase awareness and shed light on this hard to deal with, painful and exhausting condition.
Why I never lack motivation
My-a-what? I hear you say. Maybe you would know it better as Chronic Fatigue Syndrome.
When I was 18 I was at uni studying multimedia and e-commerce and extremely happy with life. I was insanely in love with my boyfriend and was taking off to the beach at every opportunity, all while getting straight high distinctions at school. Life was good.
In August, 2005, when I had just started second semester, I started to feel very dizzy in a commerce class. This was very quickly followed by sweating, shaking and extreme nausea. I immediately left and although terrified to drive, took off home. I was shaking and couldn’t concentrate, I just knew I needed to get home. I knew inside me that something was very wrong.
For the next 12 months I couldn’t study and I could barely go out. If I did go out, I became exhausted within 10 minutes, so most of my trips revolved around doctor’s visits. Most of these Doctor’s visits ended in medical professionals, supposedly there to help me, laughing in my face or telling me I was mentally ill. I remember one saying to Mum, ‘There’s nothing wrong with your daughter’, and laughing in my mother’s face. Being so physically ill and no one believing me was the worst thing on earth. I wasn’t depressed, but if I was, who could blame me being in that situation?
It’s a tough cause to support because although you can give money, every researcher is researching in a different direction. Some still put their research into mental illness as a cause. Sufferers all have different symptoms and varying degrees of severity, and there is no single treatment that all sufferers will respond positively to. All I can do to help CFS/ME from where I am sitting is to raise awareness and hope that this increases understanding. At least 50% of the people I knew when I got sick thought I was depressed or a hypochondriac, and, as a sufferer, that is a hard thing to hear from those you care about.
So why did I title this story ‘Why I never lack motivation’?
Please share my story, or tell somebody you read about it, or post about it on Facebook – whatever you can to spread the word.
Me and over a million other people could not thank you enough.
You made my day just by reading this,